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Movie Character Presentation Grand Canyon University NRS-434VN Stacey Kiser July 11, 2018 Overview of Presentation • • • • • • • Background of Movie an Character Complete functional Assessment Analysis of Health Assessment Additional Observations Nursing diagnosis an Considerations Conclusion References for community resources 1992 Drama/Docudrama True-life drama of a mother and father who battled against the odds to save their son’s life. Augusto and Michaela Odone are dealt a cruel blow by fate when five-year-old Lorenzo is diagnosed with a rare and incurable disease called Adrenoleukodystrophy or ADL, but the Odone’s persistence and faith leads to the cure which saves their boy and re-writes medical history. Based on a true story. Functional Assessments • Health Perception/Health Management • Lorenzo is five-years old and does not understand what is happening to his body, he screams and cries and depends on his parents to help him as he begins to be unable to function as a normal child. • Nutrition/Metabolic • Lorenzo depends on his mother to prepare him healthy and nutritious foods to help with his diet and remain healthy • Pattern of Elimination. • Lorenzo begins to have accidents and is unable to control his bowels and bladder, he begins to need to wear a diaper Functional Assessment Continued • Pattern of Activity/Exercise • Lorenzo becomes paralyzed and confined to a wheelchair and eventually a hospital bed at home. His parents hire a nurse and has physical therapy come in to help him to keep his limbs moving • Conceptual/Perceptual Pattern • Lorenzo is unable to talk and just cries or grunts, it is clear that he is able to hear and his mother reads to him regularly as well as the
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nursing staff • Pattern of Sleep and Rest • Lorenzo’s parents try to keep him in a normal sleep/wake pattern, but it is difficult since he has many episodes of respiratory distress r/t eventually having to be put on mechanical ventilation Functional Assessment Continued • Pattern of Self Perception and Self Concept • Lorenzo’s inability to speak and express himself except through eye-contact • Role/Relationship Patterns • Lorenzo’s parents make sure he is included in everyday activities like dinner preparation as his bed is in the main living area of the house. They try to keep him in plain view at all times • Sexuality/Reproductive Patterns • At five years old this is a non-applicable issues Functional Assessment Completed • Pattern of Coping and Stress Tolerance • Lorenzo is unable to cope and his stress tolerance is evident by how he handles issues of infections and body temperature • Pattern of Values and Beliefs • Through his parents faith and support Lorenzo is able to live longer that Doctors initially predicted. Analysis of Health Assessment Normal assessment findings Abnormal or risk-based findings • Expresses himself by crying when in • Inability to move he is at risk for • He is calm when all his needs are met stress ulcers and muscle wasting and pneumonia pain or distress and feels safe • Requiring mechanical ventilation put’s Lorenzo at risk for increased infections • Cultural: Lorenzo comes from a very Additional Observations involved and attentive family of his mother, father and his other’s sister who helps with his care throughout his life. • Geographical: Lorenzo’s father who worked for the World Bank lived on the Comoro Islands until they came back to the US. • Religious: Catholic Christian • Ethnic: Italian American • Spiritual: Deeply faith-filled family Nursing Considerations • Nursing Diagnosis • Pneumonia related to Mechanical Ventilation • Nursing Interventions • Supportive measures with humidified oxygen for hypoxemia • High caloric diet and adequate fluid intake • Analgesic to relieve pain Resources • The Stop ALD. Other Resources.(n.d.). Retrieved from http://www.stopald.org/other-resources • NORD (National Organization for Rare Disorders) • Adrenoleukodystrophy-NORD (National Organization for Rare Disorders).(n.d.). Retrieved from https://rarediseases.org/rarediseases/adrenoleukodystrophy Conclusion • With Adrenoleukodystrophy or ALD, Lorenzo is faced with many health debilitating issues. Lorenzo was only given two-years to live when he was diagnosed at the age of five. With the will and determination of his parents to help their son live they painstakingly researched and eventually with the help of a chemist hit upon a therapy involving adding a certain kind of oil containing two specific long chain fatty acids isolated from rapeseed oil and olive oil to Lorenzo’s diet. Finally at the age of 14 Lorenzo began showing definite improvements such as swallowing for himself and answering “yes” and “no” questions by blinking his eyes. Lorenzo eventually regained his sight and learned to use a computer. More medical research is needed as the oil is not FDA approved. Lorenzo died at the age of 30, living 22 years longer than expected (“Lorenzo’s Oil,” 2018). References • Adrenoleukodystrophy (ALD)- The Myelin Project. (n.d.). Retrieved from https://www.myelin.org/ald-adrenoleukodystrophy • Adrenoleukodystrophy- NORD (National Organization for Rare disorders).(n.d.). Retrieved from https://rarediseases.org/rare-diseases/adrenoleukodystrophy • Adrenoleukodystrophy: Types, Causes, and Symptoms. (n.d.).Retrieved from https://www.healthline.com/health/adrenoleukodystrophy • Lorenzo’s Oil. (2018, April 30). Retrieved from https://en.Wikipedia.org/wiki/Lorenzo%27s_Oil
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